I saw the orthopedic surgeon this morning to discuss my feet issues.
Since I have a bunch of new friends since the last time I really blogged about my feet issues, I'll give a little backstory: I have cerebral palsy, and it makes all my muscles very spastic. Somewhere in the interchange between my muscles and my brain, important communications get lost. When my muscles get tight--which is pretty much 24/7--they lack the ability to relax on their own. They stay tight, and I need massage twice a week to function in my body as a result, especially since my brain is also kind of broken when it comes to pain perception. I have what's called neuropathic chronic pain. Without going into too much detail about that because it's really confusing and complicated, it basically means my body responds to any pain I experience like it's red alert, Defcon 4, etc, etc... I have no minor pains any more, if I put myself on another person's pain perception scale. It kind of really sucks.
Anyway. Back to the CP and the spasticity it causes. It's always affected my feet the most, from as far back as I can remember. It caused bunions to develop on both feet, and caused my toes to overlap. My second toe rested on top of big toe, and still does on my left foot. I'd known since I was about 8 that I would eventually need surgery to correct the problem. It was only a matter of waiting until the bunions started to cause pain. For years, they didn't, and I got to avoid major surgery.
I finally had the right foot operated on a year ago, in September '08. The surgery itself was routine, but the recovery was grueling. It was eight weeks in a cast, with that foot constantly elevated. My right side is my dominant, stronger side; it was very difficult, having to weight bear on my weaker (and unoperated) left side. I was confined to my wheelchairs when I wasn't in bed.
After I was out of the cast, the surgeon wanted to wait a year before doing the next surgery, to be sure my right side was recovered enough to bear all my weight during the next round of recovery. So we planned to do the left side in the spring, after the spring term finishes.
But from the start, my surgeon gave me a giant disclaimer about how, because of the CP, it was impossible to predict how my body would react to surgery. Even operated on, my muscles are still spastic. They still pull at my feet, hard. There's not much that can be done to correct that tendency, since it's the signals my muscles get (or don't get, as the case may be) from my brain that are the culprit.
Really short version: the muscles in my right foot went back to pulling, except now instead of the second toe going over the big toe, it's the opposite. The big toe is drifting over the second toe, and causing it to blister painfully. And at this point I've seen two psychiatrists who have said that a second surgery on the right foot is the only lasting solution to fix the problem. Using a toe spacer and trying Botox are only in-the-meantime techniques, to help keep the problem from getting worse. These opinions were shared by the tech who made my toespacer, and my surgeon, and his resident. It was always my gut feeling, too.
So as of today, the surgery on the left foot has been bumped back another year. Correcting the right foot is more important, especially because of the blistering. It's so easy for those blisters to become infected, and that's a huge concern on all sides.
In April, the surgeon is going to fuse the big toe so it can no longer move. It's not an ideal solution, because they hate doing surgeries like that in people who are still so young, but it's my best solution because it means the muscles won't be able to pull at it, no matter how hard they try. It's looking like he's going to do the same thing to the left big toe when he gets around to the left foot.
So yeah. That was my morning. On the bright side, he didn't want x-rays now. That made me happy, because I loathe having to get my feet x-rayed.